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Navigating a personal health crisis: the role of patient advocacy In-Person/Online
- Date:
- Tuesday, October 8, 2024
- Time:
- 7:00pm - 8:30pm
- Time Zone:
- Eastern Time - US & Canada (change)
- Location:
- Wakelin Room- Max Capacity
- Campus:
- Main Library
- Audience:
- Adult
- Categories:
- Adult Event
- Online:
- This is an online event. Event URL will be sent via registration email.
Four panelists will share their expertise on the role of patient advocacy both in helping navigate a personal health crisis and in creating systems change in Massachusetts. Attendees will learn how to effectively advocate for family members and friends navigating the health system -- and how to best advocate for themselves. Such advocacy can include help understanding the second-opinion process, care coordination among medical specialists, and dealing with medical insurance issues. Panelists will discuss gaps in health equity in the Commonwealth, and how patient advocacy for all can improve equity. A Q&A session will follow the informative panel presentations.
- Advocating for friends and family members navigating the health system (Brita Lundberg)
- The role of self-advocacy in a personal health crisis (Corrine Taylor)
- Health Equity Gaps in Massachusetts: the need for systems change (Magnolia Contreras, Health Equity Compact)
- Supporting Health Equity through Patient Advocacy (Ardell Otten)
Brita Lundberg, MD, is Chair of the Board of the Health Equity Institute: A Patient Advocacy Collaborative (HEI). An infectious disease specialist and internist, Dr. Lundberg is founder and CEO of Lundberg Health Advocates, a medical consulting group. Dr. Lundberg is a member of the Massachusetts Coalition for Serious Illness, the National Association of Health Advocates, and the Society to Improve Diagnosis in Medicine. Dr. Lundberg also serves on the Board of the Greater Boston Physicians for Social Responsibility, and on the Environmental and Occupational Committee at the Massachusetts Medical Society.
Corrine Taylor, Ph.D., is faculty emerita at Wellesley College. After having taught economics and quantitative reasoning for more than 20 years at the College, Professor Taylor retired to deal with Metastatic Breast Cancer (MBC) that had metastasized to her brain. In the 9 years since she was diagnosed with MBC, Professor Taylor has been a strong advocate for herself, with the support of family, friends, and free advocates at her health care provider's clinic. She represents a patient's perspective on the Board of HEI.
Magnolia Contreras, MSW, MBA, is Vice President of Community Health at the Dana-Farber Cancer Institute. She is a member of the Health Equity Compact (HEC), which is working to address the need for systemic change to close health equity gaps in Massachusetts. HEC brings together more than eighty leaders of color across diverse organizations in Massachusetts, including hospitals, health care centers, payers, academic institutions, and public health organizations.
Ardell Otten is a Board Certified Patient Advocate (BCPA). She has spent more than 25 years working in administrative and management health care positions, in academic medical centers, public health organizations, and medical research facilities. She is the Founder of ACO Patient Advocacy, an independent advocacy and support organization that helps patients facilitate effective communications with their health care teams, coordinate care, and negotiate with insurance companies. She supports health equity through patient advocacy.
Corrine Taylor, Ph.D., is faculty emerita at Wellesley College. After having taught economics and quantitative reasoning for more than 20 years at the College, Professor Taylor retired to deal with Metastatic Breast Cancer (MBC) that had metastasized to her brain. In the 9 years since she was diagnosed with MBC, Professor Taylor has been a strong advocate for herself, with the support of family, friends, and free advocates at her health care provider's clinic. She represents a patient's perspective on the Board of HEI.
Magnolia Contreras, MSW, MBA, is Vice President of Community Health at the Dana-Farber Cancer Institute. She is a member of the Health Equity Compact (HEC), which is working to address the need for systemic change to close health equity gaps in Massachusetts. HEC brings together more than eighty leaders of color across diverse organizations in Massachusetts, including hospitals, health care centers, payers, academic institutions, and public health organizations.
Ardell Otten is a Board Certified Patient Advocate (BCPA). She has spent more than 25 years working in administrative and management health care positions, in academic medical centers, public health organizations, and medical research facilities. She is the Founder of ACO Patient Advocacy, an independent advocacy and support organization that helps patients facilitate effective communications with their health care teams, coordinate care, and negotiate with insurance companies. She supports health equity through patient advocacy.